Caregiver Resources

Community of Practice - Resources for Caregivers

November is National Family Caregivers Month. We all know the critical role caregivers play in our community members’ lives. We have gathered a list of articles, webinars, and blogs that can be shared with your peers, their family members, or other members of the community to help navigate life with paralysis and caring for their loved one.

Webpage/Factsheet/Patient Education Booklet:

Resources for Caregivers Webpage

Caregivers, Personal Care Attendants and Respite Factsheet

Become a Self-Advocate Booklet


Mental Health and Self Care for Caregivers Webinar

Dr. Dan- Care: What It’s Like to be on the Giving and Receiving End


Family Caregiver Alliance (FCA)- Offers programs at national, state, and local levels to support and sustain caregivers.

National Alliance for Caregiving (NAC)- A non-profit coalition of national organizations focusing on issues of family caregiving

Well Spouse Association (WSA)- The WSA advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner

Caregiver Action Network (formerly National Family Caregivers Association). CAN educates, supports, empowers, and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age


Caregiver Burnout Part 1: Your Needs Are Equally Important

Caregiver Burnout Part 2: Tips and Strategies for Taking Care of YOU

Being the Caregiver for Your Family Member

Hiring Outside Caregivers

Advocating for Your Child


You can find more resources at: