Caregiver Resources

Community of Practice - Resources for Caregivers

November is National Family Caregivers Month. We all know the critical role caregivers play in our community members’ lives. We have gathered a list of articles, webinars, and blogs that can be shared with your peers, their family members, or other members of the community to help navigate life with paralysis and caring for their loved one.

Webpage/Factsheet/Patient Education Booklet:

Resources for Caregivers Webpage

https://www.christopherreeve.org/living-with-paralysis/for-caregivers

Caregivers, Personal Care Attendants and Respite Factsheet

https://s3.amazonaws.com/reeve-assets-production/Caregivers-PCAs-Respite-2-21-1.pdf

Become a Self-Advocate Booklet

https://s3.amazonaws.com/reeve-assets-production/Self-Advocacy-Trifold-12-5-18-FINAL.pdf

Webinars:

Mental Health and Self Care for Caregivers Webinar

https://www.youtube.com/watch?v=BlgAZ7-XyqE&list=PLIR8xQ8tnXqhANBiSb5p9Z71bk62Mhek&index=3

Dr. Dan- Care: What It’s Like to be on the Giving and Receiving End

https://www.youtube.com/watch?v=fc42WOb7c_Q

Websites:

Family Caregiver Alliance (FCA)- Offers programs at national, state, and local levels to support and sustain caregivers.

https://www.caregiver.org/

National Alliance for Caregiving (NAC)- A non-profit coalition of national organizations focusing on issues of family caregiving

https://www.caregiving.org/

Well Spouse Association (WSA)- The WSA advocates for and addresses the needs of individuals caring for a chronically ill and/or disabled spouse/partner

https://wellspouse.org/

Caregiver Action Network (formerly National Family Caregivers Association). CAN educates, supports, empowers, and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age

https://www.caregiveraction.org/